11 Personal narratives in which patients tell their story and receive it in written form have been shown to reduce psychological distress, increase hope, and help the patient feel valued. 8– 10 Wise and colleagues modified this process for patients with cancer stages III and IV by using telephone interviews, which showed reduced anger, depression, tension, and an increased sense of peace. Chochinov, used an expert to collect the story by bedside interview and to produce a dignity-enhancing life narrative. Interviewing these patients and writing their stories is a way to give them a voice that otherwise might go unheard.ĭignity therapy with terminally ill patients, a technique developed by Dr. 5– 7īut the writing task is difficult for many people, especially those with advanced illness. 3, 4 Improved immune response was also shown for patients with hepatitis B, HIV, asthma, and rheumatoid arthritis in response to completing a narrative. In addition, studies of medically ill patients showed a decline in physician visits in the 2 to 6 months following the narrative process. 2 In varied groups, from prisoners to patients with chronic pain, the writing or talking about experiences improved mood and lowered distress. The health benefits of telling or writing the story of a difficult emotional event have been demonstrated by Pennebaker.
1 The PHI and personal narrative were paired, to give health care providers (HCPs) a sense of the veteran and their personal health goals. Another component of the interview process was the Personal Health Inventory (PHI), a questionnaire developed by the OPCC&CT that helps veterans articulate their goals and motivations for physical, social, psychological, and spiritual well-being. Veterans who chose to participate worked with an interviewer/writer to create a personal narrative, which was then shared with their patient aligned care team (PACT). Unfortunately, only a few veterans were willing to take on this task.Ī more patient-friendly approach for collecting and sharing the stories was developed and funded by the VHA Office of Patient-Centered Care and Cultural Transformation (OPCC&CT).
The veterans were first offered the opportunity to come to writers’ workshops and create personal narratives that would be shared later with their clinicians. The clinic staff wanted residents to get to know their patients as people in addition to understanding the veterans’ medical conditions. My Life, My Story had its origins in a small performance improvement project aimed at helping psychiatric residents learn about their new outpatients during rotation. The program uses personal narratives to foster a sense of connection between providers and their veteran patients. Middleton Memorial Veterans Hospital (WSMMVH) in Madison, Wisconsin. I could do a better job or at least I could remember them without looking at the chart.” This article describes a novel program-My Life, My Story-instituted at the William S. He/she just doesn’t have the time.” If you are a provider, you have heard yourself or another provider say, “I wish I had more time to get to know my patients as people. If you are a patient, you have heard or said, “I wish I felt like my provider understood me. health care system has heard one or more of the following dispiriting comments.
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